When I was researching Lyme disease and searching for answers why I was so ill, I went to the CDC website, as well as the Mayo Clinic and WebMD for what I thought would give me information I could trust. The information there is partially why I believed I did not have Lyme disease and played a part in my delayed diagnosis. Unfortunately these organizations follow the guidelines set forth by the Infectious Disease Society of America (the IDSA.) A small undemocratic group with serious conflicts of interest write the guidelines for treating Lyme disease, and doctors have to follow these guidelines or risk medical board sanctions. The IDSA ignores current science not performed by their own panel, they deny that Lyme can be a persistent and serious infection, and allow for only 28 days of treatment to eradicate it. Any treatment needed beyond that does not qualify for insurance coverage, and doctors are considered to be treating irresponsibly and beyond the scope of these guidelines if they do not dismiss the still suffering patient after those 28 days.
I wish instead of looking at the CDC (another denier of the scope and seriousness of Lyme disease) website, I had looked at these resources instead. Had I been able to access the correct information about Lyme disease, I would have explored Lyme disease as the cause of my illness quickly, before it had time to invade my central nervous system.
These are reputable and trustworthy resources run by MDs who actually risk their medical licenses to effectively treat complex Lyme disease patients in their practices, by dedicated researchers without monetary and patent conflicts that the IDSA panel has, as well as Lyme disease patients and supporters- not by Lyme disease deniers who wrongly dismiss Lyme as "hard to catch and easy to cure," and not found in certain areas, 2 lies the IDSA and it's followers love to repeat.